Moving Forward

Michael is doing great today! Bryt has been nursing him every 3 hours and he is feeding quite well.  They took out his feeding tube and asked us to replace 3 feedings a day with some fortified breast milk. This is Bryttney's milk, with some extra calories, protein, calcium, and fat in it. He is still not getting all the nutrients he needs and doesn't appear to be gaining weight the way they want him to. Based on our experience with the fortified stuff so far, he doesn't seem to like it. Hopefully he eats it now that he has an appetite.
They also took out his picc line this morning. This was a central line going into his left arm and going straight to his heart. They were using it to give him medicine that needed to mix with the blood quickly.  It's exciting they took it out because they have a high risk of infection. He does have a little skin irritation where all this stuff was taped onto him, but he looks really good.  We are most likely going to be moving upstairs this afternoon. They just need to clear out some of their rooms up there. Bryt and I are so Proud of him, he is such a strong little guy. These kids are amazing, he has already endured so much.
We also got to talk to the social worker today, she brought us some flyers and print outs for support groups and resources. It's so crazy to think we are part of this whole other world most people overlook. We now have a son living with congenital heart disease, he will have it the rest of his life.  We have been so warmly welcomed  and are already building relationships in this new community. There are kids his age that have already had heart transplants. It's a crazy and awesome thing to be a part of. These families are amazing. I think it's time I stop being so selfish with my life. If Michael were born with a normal healthy heart I probably would have continued my normal life, oblivious to all these amazing people living around me. Thank you all for your wonderful support, this has been a roller coaster ride so far and I'm sure there is more to come.  Bryttney and I are so grateful to have such amazing families and friends. You are all wonderful.