I can't wait to be home and not worry about those alarms. It is starting to get scary though- the closer it gets to going home the more real it becomes. We are both ready to go home, but we will have a hard time leaving these nurses. They have been wonderful, and if there are any problems they just come in and take care of him. I know he is a trooper and has been stable for the last couple days, but it's scary to think that we are taking him home soon. I'm sure Bryt is totally comfortable with it, she has been more confident than me through this whole experience. She just has this calm about her, she just knows everything will be ok. I am at the other end of the spectrum, always thinking about the what if's and the why's and the how's. Together we will be able to handle it, but it's starting to get a little more real each day.
When we first found out about our baby's heart condition, we both broke down with sadness and worry. After coming to terms with it and seeing all the wonderful blessings this was bringing our family, we were grateful for the opportunity to raise such a special little spirit. It sounds weird to be grateful for such a thing, but after thinking about it- who better than us? We have a stable home full of love and an amazing support system. We will both do our best to give both of our children the best life possible. I'm sure there will be plenty of challenges, but that is just part of life. Thank you for keeping us in your prayers!
