Michaels therapists haven't come for a few weeks now, and the day after their last visit we ended up taking Michael into the emergency room. He had been spitting up more than normal and then that day his alarm went off. We had four recordings sent in that weekend and each time I sent one in my heart stopped. I have learned to wait about an hour to get a call back and if they haven't called back within that time then it's not serious. I hadn't received a call back so I called into the cardiac department and they decided to have him brought in for a check. A very thorough check. EKG's and X-Rays and fun stuff. My mom went with me to keep me company and thank heavens we didn't need to check into the hospital. They decided he could have a stomach bug that was setting off his alarm when he was spitting up. Well it's been three weeks and the spit up has continued. His therapists come on Wednesday and we have an apt with the cardiologist next week to see how Michael is doing and up his medication doses. We'll see on Wednesday how much he weighs and I'm praying for weight gain again. He'd been gaining so well with his feeding tube and I'm really scared that they are going to ask me to start using it again. I just don't feel like he's keeping enough down. What am I doing wrong?? This is a question I ask myself daily. And then I pause and bury that feeling and move on. Because I have to. No time to dwell.
I've been trying to keep Zoey busy as well so that she doesn't spend the day in front of the television. If she did she would watch The Iron Giant more than the 3-4 times a day she is already. I get her outside to play while I weed the garden. I've become a Pinterest.com addict and have a lot of DIY (do it yourself) stuff on my list of things to do for the backyard as it's unfinished but I soon realized that if I wasn't getting up to weed the front yard then what made me think I could remake my whole backyard. The front yard is looking pretty good so far but I still have a ways to go. It's so much fun doing all of these things with Zoey and she loves being a big helper. She's still having her moments of pure exhaustion and jealousy but she is truly a wonderful sister and she loves her baby Michael so much. She gets so upset when she sees someone holding him like she thinks they are going to take him or something (So no offense if she does this to you). She is very protective and takes great care of him. That is until I walk into the room and she is standing over him jumping. YIKES!
We got to spend some time with her cousins this past week and they thought this was pretty funny