Thursday, September 13, 2012

The Straight and Narrow

Michael is staying strong and holding on tight to his "balance beam". We have had a week of check ups and appointments that have been great. We met with Michaels PT and OT on Tuesday. They don't have any concerns with him right now and just want to continue monitoring him on a regular basis. His OT left him some new toys to play with that should help with his teething. This boy chews on everything! He is going to be the kid that puts everything in his mouth. I'll need to keep a closer eye on him than I did with Zoey. She never got in to anything. Michael likes the new toys but Zoey Loves the new toys. I just found three of them in her room. She'll be heart broken when it's time to give them back. We are also teaching him to play peak-a-boo. His OT was having a blast!

  Trying to get these two kiddos out of the house while they are both clean and before Michael soaks his outfit in spit up is a mission. Today we were able to complete this mission and arrived at Childrens in Aurora. We had a check up with Michaels Cardiologist. Walking through those doors brings back so many emotions. While sitting in the waiting room I watched as a nurse came in to update a mother waiting on her daughter to get out of surgery. The nurse said everything went well and that she would be able to see her daughter soon. It's so hard to watch these parents sit in the exact same place we sat just three short months ago. I came out of a very happy check up and still walked down the hall crying.

Michael is doing so well that they are going to wait for another three months to have his next follow up. At that time they will take him off his aspirin and his lasix. His Cardiologist also mentioned that whether Michael is able to make it another 6 months or another 6 years before his next surgery is still a mystery. If he is able to make it to 6 years without needing the surgery then they will probably decide to go through with it at that time. Michaels risks will be much lower than they are now. The gradient behind his Mitral valve is looking better than last month but we still need to keep a close eye on the right side of his heart and his lungs to make sure the pressure doesn't begin to build up again. There is still some leakage through the valve which means that another Valvular Plasty (ballooning the valve open) is pretty much out of the question. Too much leakage could make him really sick. I was advised that Michael is a candidate for a monthly RSV inoculation which is called Synagis. I'll be taking him into his pediatrician once a month for this to keep his risk of catching this virus low. They also recommended getting his flu shot once he turns 6 months which will be on Oct 3rd. After the appointment his Cardiologist asked if he could go show him off. Michael was so happy to be seen that he was grinning from ear to ear. I was able to see his arrhythmia specialists and even the woman we met that gave us our walk through of Childrens while I was still pregnant. It was great watching Michael spread so much cheer.

I have such an amazing family. These two kids have been threw a lot. Zoey still doesn't understand a lot of it but I have to say she is just as strong as Michael. God has blessed me with two little soldiers.